According to the Centers for Disease Control and Prevention, more than 10 percent of American adults – about 20 million people – have chronic kidney disease. 16,000 people receive a kidney transplant each year.
In a recent article published in the Journal of the American Medical Informatics Association, informaticians surveyed recent kidney transplant patients to understand how access to their health information via electronic health records (EHRs) helps improve engagement in their care.
What did they discover? There are many barriers to patient portal use hindering engagement, including preference for traditional communication, not being aware of the electronic portal, low technology proficiency and poor interoperability between the systems of a transplant center and patient’s primary care center.
Why informatics? So, we can provide proper healthIT education and training to improve kidney transplant patients’ engagement with their clinicians.