2018 June JAMIA Journal Club Webinar

June 14, 2018
3:00PM
4:00PM
EST
Fee: 
Free for AMIA members; $50 for non-members
Presenters: 
Jean O. Taylor, PhD; Anne M. Turner, MD, MPH, MLIS

Monitoring for change: the role of family and friends in helping older adults manage personal health information 

Co-authors Jean O. Taylor and Anne M. Turner will discuss this month's JAMIA Journal Club selection:

Taylor JO, Hartzler AL, Osterhage KP et al. Monitoring for change: the role of family and friends in helping older adults manage personal health information. J Am Med Inform Assoc. 2018 May 2. doi: 10.1093/jamia/ocy037. [Epub ahead of print] 

Presenters

Jean O. Taylor, PhD
Research Scientist
Northwest Center for Public Health Practice
University of Washington
Seattle, WA

Dr. Taylor is a Research Scientist for the project that is the subject of today’s webinar, SOARING: Studying Older Adults and Researching their Information Needs and Goals. She has a PhD in Industrial Engineering from UW-Madison (1995), where she helped to develop CHESS (the Comprehensive Health Enhancement Support System), and studied its use by women with breast cancer and persons with HIV. Her work with the SOARING study has included recruitment and interviewing of older adults and their friends and family members, as well as qualitative data coding and analysis. Her areas of expertise include qualitative data collection methods, qualitative data analysis, and research related to the development of and use of consumer health information systems.   

Anne M. Turner, MD, MLIS, MPH
Associate Professor in the Schools of Public Health and Medicine
University of Washington
Seattle, WA

Dr. Turner is an Associate Professor in the University of Washington’s  (UW) School of Public Health with a joint appointment in the Department of Biomedical Informatics and Medical Education in the School of Medicine.  Dr. Turner’s background includes clinical medicine, informatics, and public health.  Her informatics training includes a Master’s Degree in Library and Information Sciences (2001) and completion of a National Library of Medicine (NLM) Fellowship in Medical Informatics (2004).  For the past 15 years, her research has focused on improving public health practice through information technology. She is also Principal Investigator for the AHRQ funded project under discussion in today’s webinar: SOARING: Studying Older Adults and Researching their Information Needs and Goals. Her areas of expertise are public health workforce information workflow, public health digital libraries, and natural language processing to access public health gray literature.

Format

  • 40-minute presentation by article authors considering salient features of the published study and its potential impact on practice.
  • 20-minute discussion of questions submitted by listeners via the webinar tools and moderated by JAMIA Student Editorial Board members

Interactive/Evaluations

  • Follow @AMIAinformatics and #JAMIAJC for Journal Club information.
  • Participants also receive short feedback surveys to evaluate the JAMIA JC webinar.

Managers

JAMIA Journal Club managers are JAMIA Student Editorial Board members:

Lucy Lu Wang, PhD Candidate, Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA 


Raniah Aldekhyyel, Research Assistant, Department of Surgery, PhD Candidate,  Health Informatics, University of Minnesota, Minneapolis, MN



Citation

The PubMed citation for the paper under discussion is:

Taylor JO, Hartzler AL, Osterhage KP et al. Monitoring for change: the role of family and friends in helping older adults manage personal health information. J Am Med Inform Assoc. 2018 May 2. doi: 10.1093/jamia/ocy037. [Epub ahead of print]. 

Students who are not AMIA members, but whose academic institutions are members of the Academic Forum, are eligible for a complimentary JAMIA Journal Club registration. Please contact Susanne Arnold at susanne@amia.org for the discount code. In the email, please include: full name, Academic Department, and the primary Academic Forum representative of that Academic Department. Note that AMIA Student memberships are $50, which allow access to JAMIA, all JAMIA Journal Clubs, and other webinars of interest to the biomedical informatics community. 

Statement of Purpose

The aging process brings increasing interactions with the health care system, which in turn increase the complexity of managing personal health information (PHI). A growing number of studies investigating PHI management in the context of chronic conditions and aging demonstrate the burden of PHI management, and indicate that health information technology (HIT) has the potential to support PHI management activities.  However, effective HIT should be developed with an understanding of the sociotechnical context in which older adults live, which often includes involved friends and family who take on varying roles of support.

Understanding the perspective and needs of family and friends involved in PHI management is important. Many family and friends feel responsible for monitoring the well-being of older adults. They often assume a care-giving role, assisting older adults with PHI management, or serving as proxy health decision-makers. The information needs of family and friends who support older adults are complex and depend on the monitoring phases of detection, interpretation and action. Supporting family and friends' monitoring efforts through the development of tailored HIT could help minimize burden and stress.

Topics that will be addressed are:  describing the health information work of family and friends in the context of older adult PHI management, identifying barriers that stand in the way of that support, and offering design recommendations for supportive HIT.    

Target Audience

The target audience for this activity is professionals and students interested in biomedical and health informatics.

Learning Objectives

After this live activity, the participant should be better able to:

  • List  the health information work of family and friends in the context of older adult personal health information management (PHIM)
  • Identify barriers that prevent optimal support for family and friends in their caregiving roles as managers of personal health information for older adults
  • Integrate evidence-based design recommendations for supportive HIT for family and friends caring for older adults

Faculty

Jean O. Taylor, PhD
Research Scientist
Northwest Center for Public Health Practice
University of Washington
Seattle, WA

Anne M. Turner, MD, MLIS, MPH
Associate Professor in the Schools of Public Health and Medicine
University of Washington
Seattle, WA

Accreditation Statement

The American Medical Informatics Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

Credit Designation Statement

The American Medical Informatics Association designates this live activity for a maximum of 1 AMA PRA Category 1 Credit(s)™ Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

Criteria for Successful Completion

Completion of this live activity is demonstrated by:

  • Viewing the live webinar
  • Optional submission of questions via webinar feature
  • Completion of the evaluation survey emailed at the webinar's conclusion, and 
  • Verification of attendance through the participant's electronic report through the individual login to AMIA Central at www.amia.org. 

The physician participant will be able to generate a CME certificate through the AMIA automated system. 
For a certificate of completion, contact Pesha@amia.org.

Commercial Support

No commercial support was received for this activity.

Disclosure Policy

As a provider accredited by the ACCME, AMIA requires that everyone who is in a position to control the content of an educational activity disclose all relevant financial relationships with any commercial interest for 12 months prior to the educational activity.

The ACCME considers relationships of the person involved in the CME activity to include financial relationships of a spouse or partner.

Faculty and planners who refuse to disclose relevant financial relationships will be disqualified from participating in the CME activity. For an individual with no relevant financial relationship(s), the participants must be informed that no conflicts of interest or financial relationship(s) exist.

AMIA uses a number of methods to resolve potential conflicts of interest, including: limiting content of the presentation to that which has been reviewed by one or more peer reviewers; ensuring that all scientific research referred to conforms to generally accepted standards of experimental design, data collection, and analysis; undertaking review of the educational activity by a content reviewer to evaluate for potential bias, balance in presentation, evidence-based content or other indicators of integrity, and absence of bias; monitoring the educational activity to evaluate for commercial bias in the presentation; and/or reviewing participant feedback to evaluate for commercial bias in the activity.

Disclosures for this Activity

These faculty, planners, and staff who are in a position to control the content of this activity disclose that they and their life partners have no relevant financial relationships with commercial interests: 

JAMIA Journal Club Faculty: Jean O. Taylor; Anne M. Turner
JAMIA Journal Club planners: Raniah Aldekhyyel; Lucy Lu Wang
AMIA staff: Susanne Arnold, Pesha Rubinstein
JAMIA Student Editorial Board Advisor: Michael Chiang

Instructions for Claiming CME/CE Credit

CME site (MyAMIA) works best with IE 8 or above version, Chrome, Safari, and Firefox.

  • Login to your account at amia.org; in upper right hand corner, click on AMIA Central
  • Go to “My Events" under Membership/Activities
  • Click “Apply for Credits" for this webinar
  • Follow the instructions on the Credit Registration page. Be sure both drop-down menus say “physician”
  • To print out your certificate, go to "My CME/CE Credits" under Membership/Activities.
  • Physicians will be able to print out or save their CME certificates.
  • Other attendees: if you require a certificate of participation, please contact pesha@amia.org

Contact Info

For questions about content or CE, email Pesha@amia.org. For questions about webinar access, email Susanne@amia.org