2018 August JAMIA Journal Club Webinar

August 9, 2018
3:00PM
4:00PM
EST
Fee: 
Free for AMIA members; $50 for non-members.
Presenters: 
Marianne Sharko, MD, MS

Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process

Lead author Marianne Sharko will discuss this month's JAMIA Journal Club selection:

Sharko M, Wilcox L, Hong MK, Ancker JS. Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process. J Am Med Inform Assoc. 2018 May 17. doi: 10.1093/jamia/ocy042. [Epub ahead of print]

Presenter

Marianne Sharko, MD, MS
Department of Healthcare Policy & Research
Weill Cornell Medical College / New York-Presbyterian
New York, NY

Marianne Sharko is a pediatrician who received her master’s degree in Health Informatics at Weill Cornell Medicine.  She is currently a General Preventive Medicine Resident in the Healthcare Policy and Research Department at Weill Cornell Medical College / New York-Presbyterian. Her research interests include studying the unique privacy and confidentiality concerns for the adolescent patient in the context of electronic health records, patient portals, mobile health technology and health information exchange.

Format

  • 40-minute discussion between the authors and the JAMIA Student Editorial Board moderators including salient features of the published study and its potential impact on practice.
  • 20-minute discussion of questions submitted by listeners via the webinar tools.

Interactive/Evaluations

  • Follow @AMIAinformatics and #JAMIAJC for Journal Club information.
  • Participants also receive short feedback surveys to evaluate the JAMIA JC webinar.

Managers

JAMIA Journal Club managers are JAMIA Student Editorial Board members:

Lucy Lu Wang, PhD Candidate, Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA 


Bryan Steitz, PhD Candidate, Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN



Citation

The PubMed citation for the paper under discussion is:

Sharko M, Wilcox L, Hong MK, Ancker JS. Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process. J Am Med Inform Assoc. 2018 May 17. doi: 10.1093/jamia/ocy042. [Epub ahead of print]

Students who are not AMIA members, but whose academic institutions are members of the Academic Forum, are eligible for a complimentary JAMIA Journal Club registration. Please contact Susanne Arnold at susanne@amia.org for the discount code. In the email, please include: full name, Academic Department, and the primary Academic Forum representative of that Academic Department. Note that AMIA Student memberships are $50, which allow access to JAMIA, all JAMIA Journal Clubs, and other webinars of interest to the biomedical informatics community. 

Statement of Purpose

Electronic health records (EHRs) and electronic patient portals could provide adolescent patients with opportunities for improved access to medical providers and personal health information. Although portals can enable adolescents to take a participatory role in their healthcare, complex policies and confidentiality issues unique to adolescents raise serious concerns regarding adolescent privacy and access to care.

Medical organizations are challenged to create policies governing adolescent access to electronic patient portals when they are obligated to combine patient privacy with compliance with varying state and federal laws.

Article lead author Marianne Sharko presents her team’s findings on the variability in the way portal access in adolescence is handled across the country.  They examine the decision-making process medical organizations undertake to develop teen portal policies while weighing legal, economic, social, clinical, and technological factors. 

Target Audience

The target audience for this activity is professionals and students interested in biomedical and health informatics.

Learning Objectives

After this live activity, the participant should be better able to:

  • Appreciate the variability in adolescent portal systems across the country and weigh the legal, economic, social, clinical, and technological factors involved in creating an adolescent portal policy

Faculty

Marianne Sharko, MD, MS
Department of Healthcare Policy & Research
Weill Cornell Medical College / New York-Presbyterian
New York, NY

Accreditation Statement

The American Medical Informatics Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

Credit Designation Statement

The American Medical Informatics Association designates this live activity for a maximum of 1 AMA PRA Category 1 Credit(s)™ Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

Criteria for Successful Completion

Completion of this live activity is demonstrated by:

  • Viewing the live webinar
  • Optional submission of questions via webinar feature; option to follow @AMIAinformatics and tweet via #JAMIAJC
  • Completion of the evaluation survey emailed at the webinar's conclusion, and 
  • Verification of attendance through the participant's electronic report through the individual login to AMIA Central at www.amia.org. 

The physician participant will be able to generate a CME certificate through the AMIA automated system. 
For a certificate of completion, contact Pesha@amia.org.

Note that the archived webinar does not offer continuing education credit. 

Commercial Support

No commercial support was received for this activity.

Disclosure Policy

As a provider accredited by the ACCME, AMIA requires that everyone who is in a position to control the content of an educational activity disclose all relevant financial relationships with any commercial interest for 12 months prior to the educational activity.

The ACCME considers relationships of the person involved in the CME activity to include financial relationships of a spouse or partner.

Faculty and planners who refuse to disclose relevant financial relationships will be disqualified from participating in the CME activity. For an individual with no relevant financial relationship(s), the participants must be informed that no conflicts of interest or financial relationship(s) exist.

AMIA uses a number of methods to resolve potential conflicts of interest, including: limiting content of the presentation to that which has been reviewed by one or more peer reviewers; ensuring that all scientific research referred to conforms to generally accepted standards of experimental design, data collection, and analysis; undertaking review of the educational activity by a content reviewer to evaluate for potential bias, balance in presentation, evidence-based content or other indicators of integrity, and absence of bias; monitoring the educational activity to evaluate for commercial bias in the presentation; and/or reviewing participant feedback to evaluate for commercial bias in the activity.

Disclosures for this Activity

These faculty, planners, and staff who are in a position to control the content of this activity disclose that they and their life partners have no relevant financial relationships with commercial interests: 

JAMIA Journal Club Faculty: Marianne Sharko
JAMIA Journal Club planners: Bryan Steitz; Lucy Lu Wang
AMIA staff: Susanne Arnold, Pesha Rubinstein
JAMIA Student Editorial Board Advisor: Michael Chiang

Contact Info

For questions about content or CE, email Pesha@amia.org. For questions about webinar access, email Susanne@amia.org