AMIA 2003 Spring Congress Program
Recommended Readings
- Kreps, GL. (2002). Enhancing access to relevent health information. In R Carveth, SB Kretcher, & D Schuler (Eds.). Shaping the Network Society. Patterns for Participation, Action and Change. (pp 149-152), CPSR: Palto Alto, CA.
- Neuhauser, L, Kreps, GL. (2003). Rethinking communication in the E-health era. Journal of Health Psychology. 8:(1)7-22.
- Safran, C. (2002). The collaborative edge: patient empowerment for vulnerable populations. International Journal of Medical Informatics. 00(2002) 1-6.
(c) 2003 Elsevier Science Ireland Ltd. Reproduced with permission.
General Information
The Challenge. . .
A recent Institute of Medicine report and other studies present overwhelming evidence that health care disparities continue to exist in the United States along racial, ethnic, socioeconomic, and other demographic lines.
While health information and communication technologies have revolutionized the nature of health care overall, their value has not yet been brought fully to bear on addressing specifically how to best deploy these technologies to improve health care provision to socioeconomic, geographic, ethnically diverse, and other underserved populations.
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An Opportunity. . .
The 2003 AMIA Spring Congress will bring together experts in medical informatics with health care professionals, policy-makers, and others specializing in health care provision to underserved populations to address how informatics can be used to help improve health care access and quality for the underserved, and to develop a foundation for an action agenda and an informed consensus on key issues of importance.
Program Committee
Betty L. Chang, FNP, DNSc, Chair
University of California Los Angeles
Los Angeles, California
Suzanne Bakken, RN, DNSc
Columbia University
New York, New York
S. Scott Brown, MPH
Centers for Disease Control and Prevention
Atlanta, Georgia
Thomas K. Houston, MD, MPH
University of Alabama Birmingham
Birmingham, Alabama
Gary L. Kreps, PhD
National Cancer Institute
Bethesda, Maryland
Rita D. Kukafka, DrPH, MA
Columbia University
New York, New York
Charles Safran, MD
Clinician Support Technology
Newton, Massachusetts
P. Zoe Stavri, PhD, MLS
Oregon Health and Science University
Portland, Oregon
Message from Program Chair
A recent Institute of Medicine report and other studies present overwhelming evidence that health care disparities continue to exist in the United States along ethnic, racial, socioeconomic, and other demographic lines. Groups who find themselves on the wrong end of this spectrum experience higher mortality rates from cancer, heart disease, diabetes, and HIV infections.
"Healthy People 2010" has identified the elimination of health disparities among different segments of the population as one of the overarching goals for the next decade. A key to closing disparities in health care lies in allowing consumers to take greater control of their own health care decision-making. Health information and communication technologies are instruments that have tremendous potential for empowering consumers to gain the knowledge and skills necessary for improving and maintaining their health.
While such technologies have changed the nature of health care in the United States in recent decades, our vulnerable and underserved populations - those who may be low income, homeless, disabled, and many women and people of color on the other side of what can best be termed a digital divide in health care information - have not been able to participate in, nor reap the benefits of, the consumer health information revolution.
The aim of this working AMIA Spring Congress will be to focus on the use of information and communication technologies to enhance the health and provision of health care to underserved populations. The Congress will bring together experts in medical informatics, health care professionals, policy-makers, researchers, health care industry leaders, consumer advocates, and others specializing in health care provision to underserved populations to address how such technologies can be deployed to help improve access to, and quality of, health information and health care for the underserved.
The primary objective of this working Congress is to develop a framework for a national agenda in information and communication technology that will enhance the health and health care of underserved populations. It is our plan to publish the proceedings of this conference as a series of white papers. I hope you will consider joining us for this important meeting May 28-30, 2003!
Who Should Attend. . .
- Informaticians who provide health information or services to consumers or companies in the health care industry.
- Developers of systems to help patients
(a) pursue optimal health,
(b) manage chronic health conditions,
(c) understand or prevent disease or disability,
(d) assess risk benefit of treatment options.
- Health care professionals, health educators, and other information providers who are interested in creating or using information and communication technology products and services in the provision of health care to underserved populations.
- Leaders in organizations that want to improve health care of underserved populations (e.g. managed care organizations, health benefit providers, and purchasers).
- Consumer advocates or consumer interest organizations and other interested in empowering consumers to better protect and manage their own health.
- Academics and other researchers in health care and health services delivery.
- Government officials and policy makers involved or interested in improving the provision of health care to the underserved.
2003 AMIA Spring Congress Objectives
- Identify issues and barriers to the use of information and communication technologies by, and in the provision of service to underserved populations.
- Explore key ingredients of successful strategies in reaching underserved populations.
- Examine the methodologies for measuring the impact of informatics on improving the health care of underserved populations.
- Explore efforts that are currently underway in disseminating successful solutions.
- Develop a framework for a national agenda for the deployment of health information and communication technologies, to enhance the health care of underserved populations.
| Fee Schedule |
| | by 4/7 | by 5/12 | after 5/12 |
| Member | $395 | $450 | $525 |
| Non-member | $450 | $525 | $595 |
| Student Member | $295 | $345 | $395 |
| Student Non-member | $395 | $445 | $495 |
Spring Congress Schedule
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| Wednesday, May 28, 2003 |
| 1:00 - 1:30 pm |
Opening Plenary Session
W. Ed Hammond, PhD, Duke University
Welcome from the President
Betty L. Chang, FNP, DNSc, University of California Los Angeles
Welcome from the Spring Congress Program Chair and Overview of the Meeting
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| 1:30 - 2:30 pm |
Opening Keynote Speaker
Charles Safran, MD, Clinician Support Technology
Introduction of Keynote Speaker
Laura Landro, Wall Street Journal
Keynote Speaker - Ms. Landro is a senior editor at The Wall Street Journal and leading health care consumer advocate.
Biographical sketch |
| 2:45 - 3:45 pm |
Track 1: Plenary Talks Issues and Trends
Holly Jimison, PhD, Kaiser Permante Center for Health Research (Powerpoint Presentation, 120 KB)
Where We Are Now: Current Trends and Issues
Gary L. Kreps, PhD, National Cancer Institute (Powerpoint Presentation, 48 KB)
The Ideal: What Should the Future Look Like?
Marci Campbell, PhD, MPH, University of North Carolina At Chapel Hill (Powerpoint Presentation, 1 MB)
How Do We Get to the Ideal Future?
These three presentations will outline the current status of informatics for underserved populations and speculate what the future holds and the path to that future.
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| 3:45 - 4:15 pm |
Coffee Break |
| 4:15 - 5:15 pm |
Breakout Sessions A
Breakout A1 - Track 1: Issues and Trends
Breakout A2 - Track 2: Strategies
Breakout A3 - Track 3: Evaluation
Breakout A4 - Track 4: Dissemination |
| 6:15 - 9:00 pm |
Reception and Dinner
Mark V. Williams, MD, FACP, Emory University
Dinner Speaker - Dr. Williams is a renown health literacy expert and has focused extensively on health care issues of underserved populations.
Biographical sketch |
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| Thursday, May 29, 2003 |
| 8:30 - 10:00 am |
Track 2: Plenary Talks - Strategies
Moderator: P. Zoe Stavri, PhD, MLS, Oregon Health and Science University
Karen B. Eden, PhD, Oregon Health and Science University (Powerpoint Presentation, 132 KB)
Evidence-based approaches to childbirth decision-making after cesarean: incorporating preferences of different cultures
A recent evidence report suggests that several potential factors might influence a patient's preference for TOL including education about VBAC, patient's ethnicity, and perceptions about social obligations. Educational decision tools need to be sensitive to race and culture.
Steve Shea, MD, Columbia University (Powerpoint Presentation, 21 MB, MPEG video 48 MB)
Bridging the Digital Divide in the Informatics for Diabetes Education and Telemedicine (IDEATel) Project
The IDEATel project is a randomized trial of home telemedicine coupled to case management as a strategy for managing diabetes being conducted in New York State with sponsorship from CMS. The goals are to demonstrate the feasibility, acceptability, HIPAA compliance, effectiveness, and cost-effectiveness of telemedicine. The project is targeted at Medicare beneficiaries living in federally designated medically underserved areas. It includes older patients, a large number of minorities, and many people without prior experience in using computers.
Sherrell M. Nicholson, American Management Systems, Inc., Fairfax, VA (Powerpoint Presentation, 112 KB)
The Youth Healthbuilders Corps: Addressing the Emerging Diabetes Epidemic Among African American Teens Through a Faith-based Public/Private Community Partnership Model
Diabetes is reaching epidemic proportions in the United States and African American Children are very much at risk for this disease. The National Library of Medicine (NLM) is sponsoring a pilot community-based diabetes outreach program focused on African American youth in Montgomery County, MD. This program brings together Faith-based and Public/Private partnerships while utilizing NLM's informatics tool, MedlinePlus. The two goals of the pilot are 1) to assist targeted youth in adopting and promoting healthy lifestyles to reduce their risk of developing diabetes; and 2) to help those young people gain the research, presentation and advocacy skills necessary to take the lead in educating their peers about type 2 diabetes among youth as an important health challenge in their community.
Sherrilynne Fuller, PhD, University of Washington (Powerpoint Presentation, 1.5 MB)
Tribal Connections: Partnerships for Health Information Access
For several years, the National Network of Libraries of Medicine/Pacific Northwest at the University of Washington has collaborated with Native American and Native Alaskan communities across the Northwest and, more recently in the Southwest to evaluate approaches to improving access to health information. Lessons learned will be shared and discussed in the broader context of collaboration with underserved communities.
Elliot Siegel, PhD, The National Library of Medicine (Powerpoint Presentation, 31 KB)
NLM's Strategic Framework for Bridging the Health Information Divide
NLM's outreach received a renewed emphasis in 1999 to reducing and ultimately eliminating health disparities among African-American, Hispanic, Native American and other underserved populations. NLM's comprehensive outreach strategy relies heavily on its long-standing partnership with the National Network of Libraries of Medicine. Strategies include: enhancing the technical information infrastructures; promotion of community capacity development; health consumer education; awareness and use of NLM's information resources, and development of specialized web sites especially for this audience. Empowerment of community based organizations is both a cross-cutting strategy and a desired outcome.
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| 10:00 - 10:30 pm |
Coffee Break |
| 10:30 - 11:30 pm |
Breakout Sessions B
Breakout B1 - Track 1: Issues and Trends
Breakout B2 - Track 2: Strategies
Breakout B3 - Track 3: Evaluation
Breakout B4 - Track 4: Dissemination |
| 11:45 am -1:00 pm |
Lunch |
| 1:00 - 2:00 pm |
Track 3: Plenary Panel - Evaluation
Moderator: Rita Kukafka, DrPH, MA, Columbia University
Charles P. Friedman, PhD, University of Pittsburgh
Bonnie Kaplan, PhD, Yale University and Kaplan Associates (Powerpoint Presentation, 98 KB)
Peter A. Messeri, PhD, Columbia University (Powerpoint Presentation, 96 KB) |
| 2:00 - 3:00 pm |
Breakout Sessions C
Breakout C1 - Track 1: Issues and Trends
Breakout C2 - Track 2: Strategies
Breakout C3 - Track 3: Evaluation
Breakout C4 - Track 4: Dissemination |
| 3:00 -3:30 pm |
Coffee Break |
| 3:30- 5:00 pm |
Track 4: Plenary Panel - Dissemination
Moderator: Charles Safran, MD, Clinician Support Technology
Jane H. Woods, Secretary of Health and Human Resources, State of Virginia (Powerpoint Presentation, 110 KB)
At a State level, envisioning transparent dissemination of services delivered through technology to the Elderly: perspectives from Virginia
Robyn Gabel, Illinois Maternal and Child Health Coalition (Powerpoint Presentation, 4.6 MB)
Using Partnerships to Enhance Provider and Community Education through technology: Experiences in Chicago
David H. Gustafson, PhD, University of Wisconsin (Powerpoint Presentation, 648 KB)
The Comprehensive Health Enhancement Support Systems and the Cancer Information Service: A Collaboration in Progress
20 minute talks with 30 minutes at the end for discussion. |
| 5:00 - 6:00 pm |
Breakout Sessions D
Breakout D1 - Track 1: Issues and Trends
Breakout D2 - Track 2: Strategies
Breakout D3 - Track 3: Evaluation
Breakout D4 - Track 4: Dissemination |
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| Friday, May 30, 2003 |
| 9:00 - 10:00 am |
Reports from Breakout Groups
Track 1: Issues and Trends (Powerpoint Presentation, 27 KB)
Track 2: Strategies (Powerpoint Presentation, 86 KB)
Track 3: Evaluation (Powerpoint Presentation, 39 KB)
Track 4: Dissemination (Powerpoint Presentation, 30 KB) |
| 10:00 - 10:30 am |
Coffee Break |
| 10:30 - 11:30 am |
Funding Opportunities Panel
Moderator: Gary L. Kreps, PhD, National Cancer Institute
Milton Corn, MD, National Library of Medicine (Powerpoint Presentation, 36 KB)
Stephen J. Downs, Robert Wood Johnson Foundation (Powerpoint Presentation, 76 KB)
Gary L. Kreps, PhD, National Cancer Institute (Powerpoint Presentation, 74 KB)
Eduardo Ortiz, MD, MPH, Agency for Healthcare Research and Quality (Powerpoint Presentation, 652 KB) |
| 11:30 - 11:45 am |
Closing Remarks
Betty L. Chang, FNP, DNSc, University of California Los Angeles |
Opening Keynote Speaker
Wednesday, May 28, 2003
1:30 - 2:30 pm
Laura Landro
Wall Street Journal
Laura Landro was an editor and award-winning reporter for The Wall Street Journal when she was handed the toughest assignment of her life: getting the full story on treatment options for her own potentially deadly cause of chronic myelogenous leukemia. Dismayed by the brusque and condescending manner of her caregivers at a nationally-renown cancer treatment center, Ms. Landro marshaled her investigative skills and set out on a course of self-education which put her at the heart of a growing technology-driven health care consumer movement.
Ms. Landro chronicles her harrowing story of enlightenment and recovery in the acclaimed work "Survivor: Taking Control of Your Fight Against Cancer". Compared to such literary classics as John Gunther's "Death Be Not Proud", "Survivor" is a moving and deeply personal account of one woman's struggle for knowledge, dignity and, ultimately, life itself. Refusing to play the traditional role of passive patient, Ms. Landro stood up to her doctors, demanding an active role in the management of her treatment. As she assembled a dedicated team of friends and family to research her condition, she soon discovered that she was not alone: a growing community of health care consumers are using the Internet and other information sources to teach themselves about illness, giving them the knowledge and power to demand more treatment options, more input into their own cases, and more accountability from health-care providers.
Dinner Speaker
Wednesday, May 28, 2003
6:15 pm - 9:00 pm
Mark V. Williams, MD, FACP
Emory University
"Health Literacy: Can Technology Help Patients Understand?"
Mark V. Williams, MD, FACP is an Associate Professor of Medicine at Emory University School of Medicine, and Director of the Hospital Medicine Unit. He is also Executive Medical Director for the Emory HCA Medical Centers.
Dr. Williams established the first hospitalist program at a public hospital in 1998, and now supervises one of the largest academic hospitalist programs in the U.S. He is currently the President of the National Association of Inpatient Physicians, the medical society for hospitalists. Dr. Williams' teaching activities center on promoting the use of evidence-based medicine (EBM) in patient care. A strong advocate of EBM, he has participated as a tutor in the McMaster "How to Teach EBM" course and served as a member of the EBM Task Force for the Society of General Internal Medicine.
Dr. Williams' research focuses primarily on the role of health literacy in the delivery of health care. He was a Co-Principal Investigator for the Robert Wood Johnson Foundation grant "Role of Literacy in the Delivery of Health Care," Co-Investigator on the Prudential "Literacy and Health Study," and was a member of the National Work Group on Cancer and Literacy. He also served as Assistant Chair of the AMA Ad Hoc Committee on Health Literacy and worked with Terry Davis, PhD and Ruth Parker, MD on developing a Health Literacy videotape for the AMA. More recently, he helped developed the Health Literacy Toolkit for the AMA Foundation. He has published extensively, and spoken at multiple national and regional conferences on the topic of health literacy.
CME and Other Continuing Education Credit Information
12.75 Category 1 CME Credits Available
Attendees of the 2003 AMIA Spring Congress may earn valuable continuing medical education (CME) credits by participating in the meeting. AMIA is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to sponsor continuing medical education for physicians. AMIA designates this continuing medical education activity for up to 12.75 hours in Category 1 credit toward the American Medical Association (AMA) Physician's Recognition Award. Each physician should claim only those hours of credit that he or she actually spends in the educational activity. Credit from other appropriate medical specialty organizations is being sought. More information will be available on the AMIA Web site and in the on-site registration materials. AMIA includes CME evaluation forms in the on-site registration materials. Credit from other medical specialty organizations will be sought.
Conference Disclosure
Before the program, all faculty will disclose the existence of any financial interest and/or other relationships they may have with a manufacturer or manufacturers of any commercial product or products to be discussed during their presentation. This includes any honoraria/expenses, grants, consultant role, speaker's bureau membership, stock ownership, or any other special relationship. AMIA includes a disclosure list with the on-site registration materials. A program addendum, also distributed with the on-site registration materials, will include further updated disclosure information.
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