2007 Annual Health Policy Invitational Meeting

Advancing the National Framework for Reuse of Health Data

To follow up on the recommendations of the 2006 blue ribbon panel, AMIA convened an expanded expert working group of experts, leaders, and citizens to further develop a national framework for the secondary use of health data on June 14th and 15th at the Hyatt in Reston Virginia. We initiated three technical working groups that informed the larger gathering in order to develop a comprehensive taxonomy of use and users of secondary health data, to review technologies that are used to de-identify data sets and re-identify data sets of "anonymous" data, and to define data stewardship and related policy issues.

The meeting helped further clarify the societal, public policy, legal, and technical issues in the context of secondary use of data and we expect to produce a number of work products. This process was led by Charles Safran, MD, past AMIA Chair and Don E. Detmer, MD, former President and CEO of AMIA oversaw this effort with staff support by Meryl Bloomrosen, MBA, AMIA's Vice President for Public Policy and Government Relations.

Preliminary Meeting Materials

• Discussion Questions
• Taxonomy of Secondary Data
• Data Stewardship Definition
• Data Stewardship Principles
• Scenarios for Secondary Data Use
• Work Poster for Data Attributes
• Draft Consumer Checklist

Secondary Data Meeting Agenda and Presentations

• Agenda
• Secondary Data Introductory Slides
• Taxonomy Working Group
• Data Stewardship Working Group
• Game Changers: The New Hampshire Prescription Restraint Law
• International Panel
  • Secondary use of health: Some scenarios and solutions
  • Using secondary data to cross the quality chasm…dilemmas in implementation.. don’t just rely technology + policy
  • Secondary Uses of Primary Care Data in the UK
• Data Analytic Principles
• Secondary Use of Data: Commercial Purposes
• OCR Resources on HIPAA Permissible Uses and Disclosures
• Secondary Use of Health Data in Translational Research

News

• AMIA Taxonomy on Secondary Data Use Version 1.0
• AMIA Letter to NVCHS
• AMIA Testifies at NCVHS Ad Hoc Workgroup on Secondary Uses of Health Data Meeting, July 18, 2007
• AMIA Presents at the AHIC Consumer Empowerment Work Group Meeting, July 11, 2007

Sponsors

• Deloitte
• GE Health
• GlaxoSmithKline
• IBM
• IMS Health
• The Lewin Group
• Lockheed Martin
• Eli Lilly and Company
• Northrop Grumman
• Pfizer
• Thomson Health