American College of Medical Informatics Symposium

2010 ACMI Winter Symposium (Fellows only)
February 18-21, 2010
Loews Ventana Canyon Resort
Tucson, Arizona 

 

2009 Winter Symposium
February 19 to 22, 2009
The Don CeSar Beach Resort, A Loews Hotel
St. Pete's Beach, Florida

The Wiki:  http://acmi2009.wikidot.com/

The purpose of this year's retreat is to create a roadmap for how the field of Biomedical and Health Informatics can enable and accelerate the benefits of personalized healthcare (PH). Opening introductory sessions on Friday and Saturday will introduce the topic and review some known issues and challenges. The introductory sessions will include ample time for reflections and discussion by the entire group. The discussion session will be followed by small group breakout sessions to allow focused discussion of specific topics. A given breakout will cover more than one topic.

In the final session we will synthesize the conclusions from the breakout sessions and outline a course for biomedical informatics practice, education, and research to realize the maximum benefits at the earliest point in time for PH.

The Scientific Affairs committee is responsible for the meeting design and is comprised of Stan Huff (Chair), Ed Hammond, Scott Evans, Patti Brennan, Justin Starren, and Joyce Mitchell (ex-officio).

Schedule of Events and Program

 Thursday, February, 19, 2009

 

Ø       6:30 to 8:30 PM – Welcome Reception and Buffet Dinner – Sunsets Pavilion

 

Friday, February 20, 2009

 

Ø       7:00 to 8:00 AM – Continental Breakfast – King Charles

 

Ø       8:00 to 12:00 PM – Day One Scientific Session – King Charles

 

8:00 to 9:00 AM – Introductory Addresses

 

Joyce Mitchell – Welcome

 

Stan Huff – Goal for the retreat

 

·          Create a prioritized list of actions that can be taken by ACMI, AMIA and the individual members of the organizations to hasten the realization of benefits of PH.

 

Marc Williams – PH from the clinician perspective

 

·          What is the scope and definition of "Personalized Healthcare"?

·          Activities of the Clinical Genetics Institute

·          Personal and family history

·          Biomedical informatics needs and challenges

 

Patti Brennan – PH from the consumer perspective

 

·          What is the scope and definition of "Personalized Healthcare"?

 

Mark Boguski – 23&Me

 

·          Molecular genetic aspects of personalized health, pharmacogenetics

 

9:00 to 10:00 AM – Group Discussion

 

Joyce Mitchell – Facilitator

 

Stan Huff – Scribe (session leaders will take notes)

 

·          Reflections on the introductory presentations

·          What is Personalized Healthcare?

·          Instructions on breakout sessions

 

10:00 to 10:15 AM – Break

 

10:15 to 11:00 PM – Breakout Sessions

 

Breakout Session 1 – Genomics and Pharmacogenomics Issues

 

Chuck Jaffe – Leader

 

Scott Evans – Scribe

 

·          What is the future of gene therapy?

·          How will genotyping contribute to PH?

o         Disease/cancer risk

o         Disease diagnosis

o         Disease prevention

·          How will family history contribute to PH?

·          How do pharmacogenomics contribute to PH?

·          Treating disease based on the phase of the disease that the patient is in: specific subtypes of Multiple Sclerosis, Rheumatoid Arthritis, etc.

·          Are there new ethical questions that need to be considered?

 

Breakout Session 2 – Consumer Opportunities and Issues

 

Patti Brennan – Leader

 

Justin Starren – Scribe

 

·          Accompanying persons, friends, and significant others are especially invited to this session!

·          Personalized fitness regimens

·          Personalized nutrition regimens

·          Risk from personal behaviors and habits

·          Remembering preferences and intolerances

·          Availability and enrollment in clinical trials

·          Personalized visits and encounters: convenience based on patient's work and family situation

·          Personalized health counseling

·          23&Me

·          Wellness testing procedures and timing, risk management

o         Mammography

o         Colonoscopy

o         Prostate Specific Antigen testing

 

Breakout Session 3 – Contributions of Personal Health Records to Personalized Healthcare

 

Klaus Kuhn – Leader

 

Stan Huff – Scribe

 

·          HL7 Pedigree application

·          How can PHRs contribute to PH?

·          What role do online resources play in Personalized Healthcare?

·          Can PHRs be used to link family history, personal history, and medical history?

·          Are standards adequate for sharing pedigree and family history information?

·          Can PHR data be mined to enhance Personalized Healthcare decisions?

 

11:00 to 12:00 PM – Harvesting of Ideas from Breakout Sessions

 

Joyce Mitchell – Facilitator

 

Stan Huff – Scribe

 

Ø       12:00 to 5:00 PM – Free Time/Collegial Activities

 

Ø       4:00 to 5:00 PM – ONC & The Stimulus Bill – King Charles

 

Rob Kolodner – Optional Federal Briefing

 

Ø       5:00 to 7:00 PM – Hospitality Time – Sunsets Pavilion

 

Saturday, February 21, 2009

 

Ø       7:00 to 8:00 AM – Continental Breakfast – King Charles

 

Ø       8:00 to 12:00 PM – Day Two Scientific Session – King Charles

 

8:00 to 9:00 AM – Opening Introductory Addresses

 

Stan Huff – Overview of Day 2

 

John Glaser – PH and AHIC

 

·          What is the scope and definition of "Personalized Healthcare"?

·          Summary of AHIC work and report/recommendations

·          What has been the reaction to the panel's recommendations?

·          What has happened as a result of the report?

·          Where did the idea come from for AHIC to have this subcommittee?

 

Harry Reynolds – PH from the Payer Perspective

 

·          What is the scope and definition of "Personalized Healthcare"?

·          What plans and policies are payers considering relative to PH?

·          Will PH change the way we practice medicine in the US?

 

Rob Kolodner – PH from the Government Perspective

 

·          What is the scope and definition of "Personalized Healthcare"?

·          What PH related activities is ONC undertaking?

·          What plans and policies are being considered relative to PH?

 

9:00 to 10:00 AM – Group Discussion

 

Stan Huff – Facilitator

 

Scott Evans – Scribe

 

·          Reflections on the introductory presentations

·          What is Personalized Healthcare?

 

10:00 to 10:15 AM – Break

 

10:15 to 11:00 AM – Breakout Sessions

 

Session 1–- The Role of Government in Personalized Healthcare

 

Don Detmer – Leader

 

Michael Lincoln – Scribe

 

·          Should PH be a part of healthcare reform in the new administration?

·          Where are the specific areas where Biomedical Informatics can help?

·          Will PH change the US healthcare system? Will it affect reimbursement policies?

·          Should there be laws to regulate the secondary uses of identifiable medical data?

·          Are new laws needed to protect privacy and confidentiality?

 

Session 2 - Insurers and Personalized Healthcare

 

Cindy Gadd – Leader

 

TBD – Scribe

 

·          What is the business case for PH?

·          Will there be new costs? How will we cover the costs?

·          Will Personalized Healthcare bankrupt the healthcare system?

·          Who implements and builds Personalized Healthcare systems?

·          Are laws needed to regulate payer activities related to Personalized Healthcare?

 

Session 3 - Standards to support Personalized Healthcare

 

Jim Cimino – Leader

 

Ken Goodman – Scribe

 

·          Are new standards needed?

o         Data models, terminology, messages, decision support, service APIs

·          Do we have standards for sharing genetic knowledge, i.e. gene frequency, disease associations, gene sequences

·          What role do protocols and guidelines play in PH? What is needed to enable sharing of Personalized Healthcare decision logic?

·          What should the role of the government be in standards development?

·          Are there basic research questions related to Personalized Healthcare that need to be resolved?

·          How do we educate clinicians and biomedical informaticists about personalized healthcare?

·          Who has programs, centers, initiatives around PH? What barriers or obstacles have you encountered? What lessons have you learned?

 

11:00 to 12:00 PM - Harvesting of Ideas from Breakout Sessions

 

Stan Huff – Facilitator

 

TBD – Scribe

 

Ø       12:00 to 6:30 PM – Free Time/Collegial Activities

 

Ø       6:30 to 9:45 PM – "Black Tie Optional" Dinner and Dance

 

6:30 to 7:30 PM – Reception – 5^th Floor Fountain Area

 

7:30 to 9:30 PM – Dinner and Dance – Del Prado

 

Sunday, February 22, 2009

 

Ø       7:00 to 8:00 AM – Continental Breakfast – King Charles

 

Ø       8:00 to 12:00 PM – Day Three Scientific Session – King Charles

 

8:00 to 10:30 AM – Small Group, Report Back, and Discussion

 

Stan Huff – Leader

 

·          Recommendation Generation and ACMI's Role Going Forward

 

·          Prioritization Strategy and Vote

 

·          Discuss and prioritize the most important issues, and then prioritize and summarize the most important tasks and action items for ACMI (the organization), ACMI members, and any recommendations to AMIA or other groups. Identify responsible individuals and plans and timelines for moving forward.

 

Ø       10:30 AM – Adjourn

 

About the ACMI Winter Symposium

The annual winter symposium is a four-day event, consisting of three days of four-hour morning sessions for plenary and breakout discussions, with afternoons and evenings dedicated to recreational and social activities. We kick-off the event with a welcome reception and buffet on Thursday evening. Throughout the weekend, fellows and families come together for continental breakfasts and hospitality time. We cap the social activities with a "black tie optional" dinner and dance on Saturday evening.

About the Destination

The 2009 ACMI Symposium will be held at the Don CeSar Beach Resort, A Loews Hotel, located in St. Pete Beach, Florida. Known as Florida's Legendary Pink Palace since 1928, the luxury resort is revered internationally for its sprawling, sugar-white beach, unparalleled dining, rejuvenating Beach Club & Spa, fabulous fishing, children's program, nearby tennis and golf and award-winning meeting facilities.

History of the Winter Symposium

Since 1993, a group of fellows and their families have enjoyed stimulating discussions on relevant current topics, an opportunity to share ideas and activities, and the chance to become better acquainted with other members and their families during the Symposium. Past locations are: 1993, Coronado Island, CA; 1994, St. Petersburg, FL; 1995, Tucson, AZ; 1996, Lake Buena Vista, FL; 1997, Palm Springs, CA; 1998, St. Petersburg, FL; 1999, Tucson, AZ; 2000, Marco Island, FL; 2001, La Jolla, CA; 2002 Palm Springs, CA; 2003 Fort Lauderdale, FL; 2004 San Diego, CA; 2005 Key West, Florida; 2006 Phoenix, AZ; 2007 Miami, FL; and 2008 San Diego, CA.

Registration and Hotel

Complete the registration form with your full registration payment by January 10, 2009 and provide a credit card number that AMIA will use to reserve your hotel room. You will pay the hotel directly for all nights and other expenses during your stay. Room rates this year are $265, including resort fee plus state and local tax.

  

Registration Category	Fee	Level of Participation
Fellow/International Associate	$600	Full participation
Spouse/Guest	$400	Full participation
Young Adult (11 – 21 years old)	$200	Full participation
Child (<=10 years old)	Free	Full participation

 

The collegial environment of the symposium requires a fairly small group and, traditionally, we have had a policy of limiting registration. While we have not established a formal limit this year, we have reserved a block of hotel rooms at the special rate. If we exceed that number of registrants, we will register additional fellows on a space available basis. We encourage you to register in advance of the January 10, 2009 deadline. All registrants must be dues paying members of the American College of Medical Informatics to participate. Fellows inducted in 2008 are considered dues paying for 2008.

 

Cancellation Policy
Room reservations may be cancelled 72 hours prior to your scheduled arrival without penalty. Cancellations within the 72 hour time frame will be subject to a penalty payable to the Don CeSar Beach Resort. You should directly contact the Don CeSar Beach Resort at 866-728-2206 to cancel your reservation. The AMIA staff is not responsible for canceling individual room reservations. You may withdraw your symposium registration at any time up until January 31, 2009 for a full refund minus a $50 administrative fee. After January 31, 2009, we are committed to the hotel and no refunds will be issued.

Full participation for the fellow and spouse/guest categories include Thursday evening welcome buffet dinner; buffet breakfasts on Friday, Saturday, and Sunday mornings; hospitality hours; Saturday night dinner dance, and morning program sessions. Young Adults can participate in the evening welcome buffet dinner; buffet breakfasts on Friday, Saturday, and Sunday mornings; and Saturday night dinner dance, and morning program sessions. Children can participate in welcome buffet dinner and the buffet breakfasts on Friday, Saturday, and Sunday mornings.

 

Your spouse or guest is encouraged to not only accompany you to the symposium, but also to participate in the morning sessions. This gives them a glimpse at the issues in informatics. This is also a great chance to relax and enjoy the resort and local area. In the past, several fellows have brought their children and children of all ages are more than welcome at the symposium. Refer to the registration form for eligible events.

Don CeSar Beach Resort
340 Gulf Boulevard
St. Pete's Beach, Florida 33706 USA
Phone: 1-866-728-2206
http://www.doncesar.com/

The Don CeSar Beach Resort, A Loews Hotel, is difficult to miss when approaching St. Pete Beach, Florida - with a recognizable pink glow. Please feel free to contact the concierge for travel arrangements to and from the airport and car rentals. Once at the Resort, for valet parking and the bell-staff, proceed up the ramp. Self-parking is available on the left side as you turn into the parking lot.

From Orlando
• Take I-4 West to 275 South, going through Tampa, heading across the Howard Frankland Bridge towards St. Petersburg.
• Continue south on I-275, approximately 20 miles to exit 17, marked Pinellas Bayway/St. Pete Beach.
• You are now heading west. You will pass Eckerd College on the left, and proceed through a $.50 toll booth. This will take you over a series of 3 bridges.
• You will see the Don CeSar straight ahead of you with the main entrance to the resort is your last left, one block before the traffic signal for Gulf Boulevard.

From Tampa International Airport
• The Don CeSar Beach Resort is located 30 minutes from the Tampa International Airport.
• Follow the airport exit to I-275 South, heading across the Howard Frankland Bridge toward St. Petersburg.
• Continuing South on I-275, approximately 20 miles, to exit #17 (old exit #4) marked Pinellas Bayway/St. Pete Beach.
• You will now be heading west. You will pass Eckerd College on the left, and proceed through a $.50 toll booth. This will take you over a series of 3 bridges.
• You will see the Don CeSar straight ahead of you with the main entrance to the resort is your last left, one block before the traffic signal for Gulf Boulevard.

From the Sarasota Area
• Take I-75 North to I-275 North.
• Cross the Sunshine Skyway Bridge to Exit # 17 marked Pinellas Bayway/St. Pete Beach. This exit is the one which departs off to the left.
• At the light at the end of the exit ramp, turn left. You will pass Eckerd College on the left, and proceed through the toll booth ($.50). This will take you over a series of 3 bridges.
• You will see the Don CeSar straight ahead of you with the main entrance sign is on the left hand side of the road, one block before the traffic signal for Gulf Boulevard.

Arrival and Departure
We will have a welcome reception with a buffet dinner from 6:30 - 8:30 PM on Thursday, February 19 so that you may eat when you arrive. The Symposium will end at 10:30 AM on Sunday, February 22, so plan your departures accordingly. Some members may wish to stay an extra day. Be sure to include the following Monday on your registration form and we'll secure a reservation, on a space-available basis.